Wednesday, December 1, 2010

Back To Work!

That's right...I'm back at work! A month ago I was hired as a graphic designer for CB Richard Ellis. It seriously is my dream job! I feel like I have to pinch myself most of the time...considering not too long ago, I didn't think I'd be able to walk up a flight of stairs much less get back to a 40 hour a week design job. :) Kind of amazing.

I have to credit my ability to work with a couple of great docs, some effective meds, a strict/but mild workout regimen, an amazingly supportive wife, and an iron will.

Although I'm working, that does not mean I'm miraculously cured! I still have my fair share of bad days...more than I'd like to think about actually, but I am able to get through them because I've learned what to do to help myself. My body has a hard time maintaining homeostasis internally, so I have to help it externally. What I mean is, I manage my body temperature with heat and/or AC, I nourish myself often, I drink fluids constantly, and I take my meds to help maintain my blood pressure. These are only a few things I have to do on a daily basis, but they happen to be the ones that stick out in my head at the moment.

I'm thrilled to be working and will write again soon about a typical day in the life a working Dysautonomia patient. From the meds I take (and dosages) to what I wear and the exercises I do on my workout days.

Though things are going well for me, I hope on a daily basis a cure is found so that I don't just have to "get through" the day and may even be able to enjoy my day at some point. Not too much to ask, I think.